Today was Owens hearing test.We needed to do a repeat test from the one he had as a newborn in the hospital.According to the tech at the hospital the first day he didn't pass then the next day he barely passed.Which today i found out he probable didn't pass at the hospital at all that they just dont want to be the ones to tell you your child cant here so they tell you they pass but then to follow up later with a second test.
The test today was a little bit of a challenge because Owen had to be alseep.For anyone who has to put your child to sleep you know that this isnt an easy task.As much as Owen sleeps, today he just did not want to go to sleep.It took almost 45 min of rocking,nursing and singing.Once the test started it was challenging because he is and has been, congested since birth so for the tech to get the info she needed it took 2x as long.
Now for the result.His right ear has mild to moderate hearing loss and his left ear(side with the palsy) has moderate hearing loss.One ear drum moves and one doesn't.We are to follow up with the ENT and see if he just has fluid on his ears.If so it needs to be drained.Once we see the ENT we will have to go back for a second more in depth hearing test.One good note tho is it isn't nerve related.Also the ENT should be able to address his congestion problem.
Im finding out with every visit I go to they all seem to think all his problem are related and it points more and more to Moebius Syndrome.From the choking,gagging,spiting up to the hearing,eye and facial palsy.We will know alot more after his MRI.Also Today we were referred to dysmorphology to look into it more.So we add one more doctor to the list.
I cant say enough how incredible the group of doctors are that we now go to.Every person i see has SO much information.They all interact and work with each other and get you to the right doctor that you need to see.It is making this process a little bit easier for me.
Upcoming adventures are O.T. on Friday, Gastroenterology on Monday and Reg Pediatrics on Tuesday.
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